Welcome to Redefining Myself!

My inward journey to living a mindful and quality life

while living with NP-SLE, RRMS and CIDP

and their overlapping accessories.

Slapping the face of many things demyelinating.

Wednesday, July 31, 2013



Today I may feel like shit. Today I may not be able to cook a meal for my daughter, we may have to eat sandwiches, or left-overs. Today I may not be able to take a shower, or brush my teeth. Today my thinking may be so skewed that I cannot even hold a conversation with someone. Today I may not answer the phone or emails. Today I may feel like giving in and giving up. Today I may feel defeated. Today I may isolate. Today I may be so exhausted but I cannot sleep!

But all of these things that my body is feeling and all of the thoughts that my mind is entertaining, will pass.

Over the years I have learned that I will not feel these things indefinitely. And I have also learned from my living breathing experiences, that these dark periods of demoralization are normal reactions when living with chronic illness. Periods of demoralization do pass.

During these times I have found that just admitting (if even to a few people; and I don't even have to elaborate on the details!!) to these periods of dark times, help strengthen me to walk through the seemingly hopeless times. I have learned to be willing to believe that these dark times do pass- because inevitably they do.

My body has experienced many residuals that have lead to physical disability, but I do know that though my body has gone south, as long as I'm willing and open-minded, I keep learning new tools to live, move and have my being.

#SickChickPMA  #CNSGrrrl