Welcome to Redefining Myself!

My inward journey to living a mindful and quality life

while living with NP-SLE, RRMS and CIDP

and their overlapping accessories.

Slapping the face of many things demyelinating.

Saturday, July 21, 2012

Neuro Psychiatric SLE FAQ

 It's estimated that 70-90% of SLE patients will experience central nervous system involvement. Many experiencing mild to moderate cognitive impairments and headaches - both increasing in intensity during times of active disease. The Lupus headache often only responds primarily to corticosteroids (even at moderate doses) and very rarely to pain medications. While a smaller percentage of patients will experience life-threatening cerebritis. What tools and accommodations have you learned to make in your life to mitigate the impairments of CNS Lupus/NPSLE (neuro psychiatric SLE) ?