A long time ago I used to be young & had a strong body. Today I have been seasoned some, and my body has other ideas and mind keeps rebelling against those ideas. Then I'm faced with another reality check. I'm not a Zen master. I fight the change, I wrestle shit to the ground, I process things and decompress. I even have moments of feeling defeated but I just keep trying to rise above these life circumstances and turn my experiences into tools to help other's. Some days I do not want to help other's, and I need to retreat into that cocoon. I'm not a delicate butterfly. I wear boxing gloves. In spite of it all, I'm grateful to be here for another day. And what humbles me out, is that I have a handful of people who love me because of all of this.
#SickChickPMA, #CNSGrrrl
Welcome to Redefining Myself!
Saturday, February 16, 2013
Wednesday, January 23, 2013
Beware of the pity-pot
I've explained to my baby preteen girl, that even though by American standards that we are living at the poverty level, we are still so blessed to have a roof over our heads (even though it is a fight to keep it over our heads, which I'm sure a few of you can relate to).
That if we lived in other countries with my diseases and their secondary companions and her with her bleeding disorder, we'd most likely have no health care, no medications, and living as a financial burden on family members, and living in extreme poverty. I told her that, for example, we'd be effed if we lived in my great grandparents native Russia or Poland or her dad's native country, Mexico; unless we had very wealthy family to depend on.
When benlysta™ (very expensive infusional medication) was approved by the FDA here in the US, I spoke with an Egyptian rheumatologist at Cairo University about it and he explained to me that many patients in his country couldn't even afford to pay for the cheaper off label drugs, let alone this new medication.
One Ukrainian neurologist explained to me that I'd be in terrible shape in any of the Eastern Block countries. I told her that I understood that I'd be very F'd and that I am very mindful to other people around the world who have even more grave illnesses, that have dependent children and do not have the medical care or governmental assistance that I have.
I try to keep this perspective when I'm feeling overwhelmed with my little corner of the world.
Wishing you well and a pity pot free day!
#SickChickPMA/#CNSGrrrl
That if we lived in other countries with my diseases and their secondary companions and her with her bleeding disorder, we'd most likely have no health care, no medications, and living as a financial burden on family members, and living in extreme poverty. I told her that, for example, we'd be effed if we lived in my great grandparents native Russia or Poland or her dad's native country, Mexico; unless we had very wealthy family to depend on.
When benlysta™ (very expensive infusional medication) was approved by the FDA here in the US, I spoke with an Egyptian rheumatologist at Cairo University about it and he explained to me that many patients in his country couldn't even afford to pay for the cheaper off label drugs, let alone this new medication.
One Ukrainian neurologist explained to me that I'd be in terrible shape in any of the Eastern Block countries. I told her that I understood that I'd be very F'd and that I am very mindful to other people around the world who have even more grave illnesses, that have dependent children and do not have the medical care or governmental assistance that I have.
I try to keep this perspective when I'm feeling overwhelmed with my little corner of the world.
Wishing you well and a pity pot free day!
#SickChickPMA/#CNSGrrrl
Thursday, December 20, 2012
Pre-Solstice Reflections for 12/21/2012
There's too many people needing to believe in apocalyptic events of 12/21/2012. It's some form of hysteria and a social phenomena that many people in recent centuries have become obsessed with. Hell, there's people all over the world, like say, the well-balanced individuals in France who are going to congregate on some mountain to save their **own asses** from the end of the world and who are arrogant enough to believe that they have been chosen to rebuild a new world. Really?!
Well, guess what, the end of the world is happening to people all over the world. Innocent children and adults being murdered, starving, homeless, with grave medical conditions and no medical care. Wars, dictatorships, fascists and innocent people trying to live in the midst of it.
What about the families of the blameless victims of the Sandy Hook tragedy? The worse thing on Earth that a human being can experience is for a parent to lose a child. There is nothing that can prepare the human psyche to experience this! I'm certain that the pain that they are carrying is immensely horrific and down right apocalyptic. I pray for those parents and loved ones who are suffering with such emotional agony.
And then we have those very interesting human beings preparing for end times in the face of global human suffering. There mothers in digging through trash bins for grains of rice to feed their children and then there are bozos preparing for the end of the world. Really? And Americans are wailing about the closure of the junk food icon Hostess. Really??
Hell, and I'm just as bad as the dooms day people, because I struggle with apocalyptic events between my ears, with just trying to make my pennies stretch til the end of the month and to avoid hospital visits and to keeping my kidneys and CNS stable and to stay alive to raise my daughter into adulthood.
Reality check! Maybe, just maybe, I suffer from hysterical thinking too?
Hi, My name is Kim and I'm an apoca-holic.
Wishing each of you peace of mind ♥
Well, guess what, the end of the world is happening to people all over the world. Innocent children and adults being murdered, starving, homeless, with grave medical conditions and no medical care. Wars, dictatorships, fascists and innocent people trying to live in the midst of it.
What about the families of the blameless victims of the Sandy Hook tragedy? The worse thing on Earth that a human being can experience is for a parent to lose a child. There is nothing that can prepare the human psyche to experience this! I'm certain that the pain that they are carrying is immensely horrific and down right apocalyptic. I pray for those parents and loved ones who are suffering with such emotional agony.
And then we have those very interesting human beings preparing for end times in the face of global human suffering. There mothers in digging through trash bins for grains of rice to feed their children and then there are bozos preparing for the end of the world. Really? And Americans are wailing about the closure of the junk food icon Hostess. Really??
Hell, and I'm just as bad as the dooms day people, because I struggle with apocalyptic events between my ears, with just trying to make my pennies stretch til the end of the month and to avoid hospital visits and to keeping my kidneys and CNS stable and to stay alive to raise my daughter into adulthood.
Reality check! Maybe, just maybe, I suffer from hysterical thinking too?
Hi, My name is Kim and I'm an apoca-holic.
Wishing each of you peace of mind ♥
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