Today, I'm on day four of 1 gram of solumedrol. Tomorrow I will receive 500 mgs of the solumedrol to let my adrenals kick back in. Well, as it would all pan out I'm very glad that I got the steroids when I did. I am being infused as I type. Got this rocking BlackBerry and am trying out all its bells and whistles! A gift from the Big Kahuna, Papa Moose, my Daddy! I'm pretty slow and my coordination seated and standing is still goofy.
My evil headaches are with me and I've been running those evil systemic fevers at night. Of course the steroids will cool all the crap down and I will feel better each day over the next few weeks. I have not started the Cellcept. My rheumatologist and I both left messages for Dr. Cree this week and I'm waiting for my two specialists to talk, set the target dose for the Cellcept and get things rolling for me.
I need relief from this CNS battle. Each flare leaves residuals and the time to recover increases. I am not expecting any miracles but at least some decrease in flares. I'm entertaining a vacation from this! It has been a year now of the unfolding and evolving CNS battle. I'm fighting the good fight, I have my moments of weariness and frustration, but I refuse to cave in to all of this crap! I'm looking at the infusion box and I have 40 mls left to todays infusion. I will not quit! Keep the Light Going ~